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Getting the Financial
Information You Need

Federal and State Programs

Federal and State Programs

There are federal and state programs that may help with access to education, financial assistance, and home healthcare services. If you don’t qualify for Medicaid or Social Security Disability Insurance (SSDI) benefits, you can apply for a state waiver to get you the support you need. To take one more thing off your plate, we’ve put some helpful links all in one place.

Federal

There are several federal programs that offer various levels and categories of assistance to people with disabilities.

IEP

Individualized Education Programs are designed by teachers and administrators in public schools to improve educational results for children with disabilities.

Medicaid provides health coverage to millions of Americans, including people with disabilities.

Supplemental Security Insurance and Social Security Disability Insurance are programs that offer benefits to disabled people (including children) who have limited income and/or are unable to work due to their disability.

State

Each state offers programs that can provide financial assistance and additional resources to people with disabilities.

Home and community-based services (HCBS) waivers help people receive long-term care services and support at home.

National Academy for State Health Policy Logo

The National Academy for State Health Policy (NASHP) works with states to improve systems of care for children and youth with special health care needs and their families. Their focus is on improving coverage, access, and continuity of care and integrating public health, education, behavioral health, social services, and long-term services and supports to better serve these young people and improve health outcomes.

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Home and community-based services (HCBS) waivers help people receive long-term care services and support at home.

The National Academy for State Health Policy provides a list of resources for children and youth with special healthcare needs.

NASHP

Grants

Grants

There are grants available for children and others living with rare medical conditions that offer financial assistance with necessities such as medical equipment, service dogs, travel expenses, speech therapists, and other medical, therapeutic, and living expenses. Explore these grants to see which ones might meet your specific needs, and check back as we continue to update this list.

The Chelsea Hutchinson Foundation Logo

The Chelsea Hutchison Foundation serves individuals, families, and communities affected by epilepsy by raising awareness of the common yet little-known condition SUDEP (sudden unexpected death in epilepsy), by providing support and equipment for prevention of this occurrence, and by creating a safe space and raising awareness within the greater community.

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The Danny Did Foundation Logo

The Danny Did Foundation works toward its mission to prevent deaths caused by seizures with these main goals in mind: advancing public awareness of sudden unexpected death in epilepsy (SUDEP), enhancing the SUDEP communication model between medical professionals and families afflicted by seizures, and the mainstreaming of seizure-detection and -prediction devices that may assist in preventing seizure-related deaths.

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The Dravet Syndrome Foundation Logo

The Dravet Syndrome Foundation includes a listing of national and state-by-state funding agencies that offer grants to families to defer conference travel expenses.

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The Morgan Amelia Foundation Logo

The Morgan Amelia Foundation is a 501(c)(3) nonprofit charity, founded in 2013, that provides medical necessities to children with Dravet syndrome.

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Lili's Lift Logo

Founded and incorporated in February 2007, Lili’s Lift is a 501(c)(3) nonprofit organization that seeks to empower and assist children with disabilities (as well as their families, friends, and communities) through education, advocacy, and volunteer opportunities.

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The My Gym Challenged America Foundation Logo

The My Gym Challenged America Foundation (MGCA) is the registered 501(c)(3) charitable division of My Gym Children’s Fitness Center, a worldwide organization dedicated to helping children 6 weeks through 10 years of age develop physically, cognitively, and emotionally. With hundreds of locations in more than 30 countries, My Gym offers structured, age-appropriate weekly classes that incorporate music, dance, relays, games, gymnastics, sports, and more active and rewarding lives.

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Dontpayfull Website Logo

Search this website for discounts on products for children with special needs, including Travel Help, Therapy Tools, Mobility Aids, and more.

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The information provided about these organizations is from their respective websites. For complete details, please visit their websites by clicking Learn More.

The information provided about these organizations is from their respective websites. For complete details, please visit their websites by clicking Learn More.

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