• Getting the Financial
    Information You Need
  • Connecting With the Community
  • Living with Rare Epilepsy
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Getting the Financial
Information You Need

Connecting with the Community Icon

Connecting With
the Community

Advocacy Organizations

These organizations have information and resources that may be helpful to patients and caregivers. Visit their websites to see how they may be useful to you.

Child Neurology Foundation Logo

Mission: To serve as a collaborative center of education and support for caregivers and their children with neurologic conditions.

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The Dravet Syndrome Foundation Logo

The Dravet Syndrome Foundation includes a listing of national and state-by-state funding agencies that offer grants to families to defer conference travel expenses.

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Citizens United For Research in Epilepsy

Mission: To cure epilepsy, transforming and saving millions of lives. We identify and fund cutting-edge research, challenging scientists worldwide to collaborate and innovate in pursuit of this goal.

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Epilepsy Foundation Logo

Mission: To lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

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LGS Foundation Logo

Mission: To improve the lives of individuals affected by LGS through research, programs, and education.

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Tuberous Sclerosis Alliance Logo

Mission: The Tuberous Sclerosis Alliance is dedicated to finding a cure for TSC while improving the lives of those affected.

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Variety Charity Logo

Variety is a charity that focuses on multiple unmet needs of children who are sick, disadvantaged, or living with disabilities and other special needs at a local, national, and international level. Local chapters offer various services, from recreational events to specialized medical and leisure equipment. Link to their North America page to select the region closest to you and to learn more about each chapter.

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As America’s largest nonprofit healthcare organization, Easterseals is committed to the comprehensive health and wellness of the more than 1.4 million people it serves each year and is prepared to respond to the needs of the 1 in 4 Americans living with disability today with outcomes-based services for all disabilities throughout the lifespan.

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The information provided about these organizations is from their respective websites. For complete details, please visit their websites by clicking Learn More.

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Living With
Rare Epilepsy

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