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Share Your Expertise

Are you a caregiver for someone with rare and severe childhood-onset epilepsy? Your knowledge and experience could make a difference for others in the community. Give us a tip or life hack that has helped in your day-to-day activities. Some examples of tips are "Bring a pair of sunglasses when you leave the house to help reduce light-triggered seizures" and "Plan something fun to do with your kids each day."

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This site will not discuss specific treatments, medications, and medical devices. To report a side effect or drug complaint, contact the manufacturer or Food and Drug Administration (FDA) at or call 1-800-FDA-1088.

Please do not mention any brand names or medications, or provide any medical or treatment advice. Tips are not to be used as a substitute for medical advice, diagnosis, or treatment of any health condition or problem. Your healthcare provider is the best resource for medical advice and information, and medical questions should be addressed to your physician or a licensed healthcare provider.

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